Who we are
Our website address is: https://www.patientinform.org.
Our Commitment to Privacy
Your privacy is important to us. To better protect your privacy, we provide this notice explaining our online information practices.
PatientINFORM collects anonymous information, which refers to data that cannot be tied back to a specific individual. For example, we monitor traffic patterns and site usage to help us develop the design and layout of patientINFORM.org.
Our site’s forms may require you to give us personally identifiable information (like your name, e-mail and postal address). PatientINFORM will only use the information we collect to contact you and occasionally notify you about important changes to the web site or new services and features.
This site links to other sites. Neither patientINFORM nor the participating organizations are responsible for the privacy practices or the content of such websites.
We take appropriate security measures to protect against unauthorized access to or unauthorized alteration, disclosure or destruction of your information.
The images featured on the patientINFORM website are restricted Licensed Material for any use other than personal use, and the republication, retransmission, reproduction or other use of this Licensed Material is strictly prohibited.
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.
If you visit our login page, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.
When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.
If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
How long we retain your data
If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.
For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.
What rights you have over your data
If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.